In 2019, we started collecting answers for a MESI-STRAT questionnaire and updated the questionnaire after the first interesting results in mid 2020 to gather more background of the respondents (e.g. education, support systems). Both questionnaires were available in German and English in versions addressing patients as well as the general public. They were distributed online as well as in hard copy by mailings to PATH patients, at the MUI hospital and at events (e.g. patient days, science nights). In total, we collected 665 answered questionnaires.
You find a summary of the results in our latest newsletter.
This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 754688.